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- Patient and user information -
patient support groups related to sSMC
UNIQUE = rare chromosome disorder support group: http://www.rarechromo.org/
Email: info@rarechromo.org
Helpline: +44(0)1883 723356
developed several leaflets in connection with sSMC
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Other support groups for genetic disorders including sSMC
CONTACT a family - for families with disabled children: https://contact.org.uk/
LEONA - Verein für Eltern chromosomal geschädigter Kinder e.V. (German site): http://www.leona-ev.de/
Living with Trisomy: http://www.LivingWithTrisomy.org
Valentin APAC: http://www.valentin-apac.org
Unique Danmark: http://www.uniquedanmark.dk
Chromosome Disorder Outreach (CDO): http://www.chromodisorder.org
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sSMC(9)-related support groups
9TIPS Trisomy 9 International Parent Support:
http://www.trisomy9.org/9tips.htm or http://health.groups.yahoo.com/group/9tips/
Trisomy 9: http://www.trisomy9.org
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sSMC(12)-related support groups
PKS Kids: http://www.pkskids.net
Pallister-Killian Syndrome foundation of Australia: http://www.pks.org.au
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sSMC(15)- and UPD(15)-related support groups
IDEAS: http://www.dup15q.org
idic15-EU: http://health.groups.yahoo.com/group/idic15eu
Nonsolo15: http://www.idic15.it
Prader-Willi-Syndrom-Vereinigung (PWSV) Deutschland e.V. (German site): http://www.prader-willi.de
Prader-Willi-Syndrome in Romania (Romanian site and English translation):
http://www.apwromania.ro
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sSMC(16)-related support groups
DOC16; Disorders of chromosome 16: http://www.trisomy16.org
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sSMC(17)-related support groups
familyofchromosome17disorders: http://health.groups.yahoo.com/group/familyofchromosome17disorders
Dup-17p11-2, 17p11.2 Duplication: http://health.groups.yahoo.com/group/Dup-17p11-2
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sSMC(18)-related support groups
Chromosome 18 registry [&] research society: http://www.chromosome18.org
Chromosome 18 Registry [&] Research Society (Europe): www.chromosome18eur.org
Tetrasomy18p: http://health.groups.yahoo.com/group/tetrasomy18p/
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sSMC(21)-related support groups
International Mosaic Down Syndrome Association: https://www.imdsa.org/
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sSMC(22)-related support groups
Cat Eye syndrome international: http://cateyesyndrome.info/
Chromosome 22 Central - C22C; Chromosome 22 related disorders: http://www.c22c.org/
KIDS-22q11 e.V. (German site): http://www.kids-22q11.de/
Ring22: http://health.groups.yahoo.com/group/ring22/
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sSMC(X) and (Y)-related support groups
Turner Syndrome Support Society (UK): http://www.tss.org.uk/
